Our gaunt faces leave us behind
Irises reflecting goodbye
The speed of life dilating eyes
a blank space where sparks should alight
tired and harried by all this accumulation of sight
Yearning something simple
but nothing yet to delight
A numbness setting into the lungs
autism
The savageness of being human
A contortion of years
Pass by on faces
For milliseconds at a time
Frankenstein’s skeletons within
Gargoyles screaming
Through the pores of our skin
Stories running through the wrinkles
Harbouring humour
Creasing at the thought of those we’ve lost
Skin sagging with the baggage
Being human
Consciousness a savage
Wreaking havoc
On our mammalian brains
Tying ourselves in knots
Tying ourselves in knots
with words
While trying to be inclusive
becoming more exclusive
The internet a reflection of autism
Too many ideas at once
All filters gone
becoming more confused
Stuck on one
One becomes none Because too much at once
One becomes millions
of one repeated in different words
till the linguistic game
evolves beyond this world
One becoming millions
that may as well be none
Because it’s all too much
to act upon.
*The use of the word ‘Autism’ is not meant in a derogatory way, merely an expression of recognition that what I see happening in the confusing chaos of the social media websites on the internet remind me of my own symptoms of Autism and how my thoughts can spin and spin, and spin and become stuck in cycles.
And the symptoms of too much information and stimulation at once, though it takes less than the amount we can find online to cause derailment of the mind, the symptoms of the derailment of conversations and peoples minds online mirrors my own experience with Autism with every day things and I notice it online all the time.
Shame
I utter the word ‘hello,’
And reddened in the face
You look away
Hands in pockets
Lips a tight line
Containing a smirk
That’s for me, only mine
I know not what was said or done
But your embarrassment is palpable
I guess, I must be in the wrong
Later it will come to light
The tone of my voice wasn’t right
Or the way I stood or looked down
Or it was the way words sound
When coming out of my mouth
And the bashfulness on your face
Communicates to everyone
And like a virus it infects them all
Permeates the air
And I become
The cigarette end of jokes
And I, left in the ruins
Become the ash
Greyed and cemented
Into shame
Music is sadness
Music, apparently it has the power to make people feel emotions.
Happy, sad, angry, sentimental etc.
But for me it doesn’t matter if it’s a happy song or a sad song; it all sounds depressing to me.
Music either makes me sad or sentimental but never happy.
The happier the song often, the sadder I become.
Because it’s a sound so cut off from anything I’ve ever felt, it sounds to me like delusion and desperation rather than happy and fun times.
Happy songs seem like tears should always mark their endings.
Because that’s what music is to me, it’s audio wallpaper over changes.
I blame TV and films for this. You know those scenes where two characters say their goodbyes for the last time, and then the music plays as the camera shows one of them walking away, getting further and further away as the credits start to scroll over the screen.
Or the music plays as someone has an epiphany that will be good in the long run, but at that moment it’s tinged with sadness, goodbyes, change.
Music is a vehicle for emotion; it moves it through you, emphasizes feelings you already had but weren’t necessarily aware of.
For me, music is a chariot for my sadness, something I listen to when I need my sadness to have sound.
But otherwise, music is too overwhelming because my feelings even in the silence are already too much.
To put music on for me is like going full throttle, no breaks.
Speeding to the inevitable crash.
All these thoughts
All these thoughts swim
Till they run
Merging and
Words become undone
Falling away
Somewhere hidden
The thoughts gone
But the feelings remain
Without a name
And then a new thought
Falls into view
Only to fall away
Before you really knew
And the feeling grows
But the words, you do not know
And you wonder
Something
Somewhere
The letters of the thoughts
R
u
n
n
i
n
g
.
.
.
.
Certified Adult
One of my many recurring dreams involves becoming suicidal (something that happens in my real life sometimes too) to the point that I end up being taken to hospital.
I always end up in the same ward I was on in my teenage years.
As a nod to the fact I’m now actually an adult, the doctors find me a room reluctantly, only on the basis that I will be moved to the appropriate hospital and ward the next day.
The nurses and doctors always tell me it’s time to stop going there and I always reply with the question, “So what do I do instead?” they shake their heads and look at me with a tired, exasperated expression on their faces.
In the dream, I am very aware I’m an adult on an adolescent ward and ironically in real life, the idea of being around adolescents is actually my idea of a nightmare. But this just goes to show how much more fucked up the wards are for adults.
Now I’m categorised as an adult and therefore also classified as someone who should be doing something ‘useful.’
Any argument from me that I don’t cope with the world ‘out there’ and with wider society and all the things expected of us, is met with disbelief and a constant need to try to bolster up my confidence.
But I wish to provide food for thought against this mentality and push to have it be a ‘confidence issue.’
Many of my school reports mention how I’m a ‘good pupil’ and ‘very quiet’ there will also be mention of my clear social problems. Talk of how I need to learn and gain more confidence along with stark warnings that I will ‘struggle to cope in the ‘bigger’ world’ if I continue on my more than ‘normal quiet’ and ‘abnormal social etiquette’ trajectory.
To a teacher actually paying attention, they may also note a slow learning process.
But for most teachers, the attention was entirely upon my lack of social ability and perhaps my apparent ‘loneliness. If I managed to make a friend, and it should also be noted that some of those ‘friendship’s were forced upon me by the teachers, it would be lauded as a massive deal. Little did they know was that a few of my so-called ‘friendships’ lead to more alienation than I had before I met them for one straightforward but tragic reason, I was easy to take advantage of.
It wasn’t me they were congratulating when I ‘made a friend’, It was themselves.
It wasn’t just teachers, it was other kids parents. I knew very well their sons and daughters didn’t want to invite me to their birthday party and guess what? I wasn’t bothered because I didn’t want to go to their damn party anyway! But their parents insisted I be invited. I know it was their parents because kids being kids didn’t hide it very well, especially if their mother was with them. They’d turn to their mother, looking up at her and say, “But, mum!” as they held tight a crumpled invitation that was for me. And their mother in that hushed tone they try to do, “You can’t invite everyone else and leave them out!” They say while they looked at you through the corner of their eye and thought themselves safe from observation becasue I didn’t look at peoples faces. But I have periphery vision, and I’m actually more observant than anyone would give me credit for.
But they, along with teachers, saw a kid who lacked confidence, and through this perception, they forced ‘friendships’ and ideas onto me. They invited me to their daughters and sons parties with a feeling I imagine of having done a good thing.
Through everyone’s mission to make me a ‘confident’ ‘normal person’ I lost confidence.
I became so ultra-aware of my social quirks and awkwardness that my social awkwardness actually became more magnified. Because while I was trying to be more ‘normal’ I was failing and also feeling rather uncomfortable trying to be normal and so I ended up perpetually embarrassed. Which only added to the cycle of more adults trying to ‘bolster up my confidence.’
Fast forward to that year I ended up on the adolescent ward deeply unhappy, self-harming and constantly on the edge of suicide and my confidence really was a non-existent thing.
But there in that hospital was an allowance for my weirdness while also making friends, with talk of once again upping my confidence but in an environment where my weirdness was allowed to be part of my confidence.
I would make no claim that I gained full self-confidence. I used humour, sarcasm as a way of trying to be somewhat more ‘normal’ and soon sarcasm became a way of life for me and I don’t regret that.
My sarcasm comes from a place of finding much of humanities hilarious sayings and thoughts into their logical conclusions. My sarcasm is in effect a very literal sense of humour.
All in all, despite my illness putting me in the hospital it did become a place I ultimately came to feel a sense of belonging.
My Depression remained ever-present and still remains to this day, and I doubt it’s a thing that will ever truly go away for me.
I remember sad times in that hospital, I remember moments of emptiness as I lay in my bedroom after having spent the earlier evening joking with other patients.
But I found my sense of humour in that hospital because I was finally able to use my creativity in an environment that seemed to fit me more than ‘mainstream’ schools and environments.
And what I have learnt is that ‘out there’ in that wider world I truly am a fish out of water. And while therapists, support workers, social workers may want to push an idea of growing confidence I hope they’ll pause and think.
Too quick are they to jump to that idea rather than see that maybe I’m right. And maybe me not being able to be ‘out there’ in that wider world is okay.
I know that for me I only seem to ‘progress’ in specific environments and once you take me out of that environment I’m like a fish out of water.
So obsessed with the idea of being and becoming ‘useful’ we have become that we want to try and make people fit a square peg through a round hole.
We want to get people like me to a certain point of ‘functioning’ and then say, “Farewell and good luck.”
And if I say I don’t think that day will come and or should come for something that is lifelong I will be labelled as someone doesn’t want to help themselves. Someone reluctant to try.
But I’m not saying I don’t try or won’t try, I’m saying that when I function my best I’m not functioning my best because I’m now suddenly ready to be ‘out there’ it’s because in the best environment for me.
And it’s not to say that I don’t wish to challenge myself, but rather that so many ‘normal’ things are challenging for me.
When we say, “Farewell and good luck,” What do I do then?
I need to be a giant
I’m too small
For these feelings and thoughts
I need to be a giant
To keep it all contained
Inside
Autism: Instructions and executive dysfunction
I read somewhere on my travels through autistic information, that it’s usually best to tell someone with autism what to do when giving instructions rather than what not to do.
I remember when I read that I had a light bulb moment.
It resonated with me, a lot!
The number of times I look like a bumbling fool when being instructed to do something where they have told me a whole list of things of what not to do is uncountable.
I’ve spent my life looking like a clumsy, bumbling idiot, seeming to be unable to follow the simplest of instructions.
There are a few reasons for this. Giving me a list of instructions is overwhelming to me, I don’t know quite why. I can’t quite fathom what it is, only that my brain just goes into an explosive mode. It’s like the list is swimming in front of me with of all these possibilities and even though technically the list may be ordered well, my brain seems to perceive it as chaotic and a mindfuck.
The other reason is I have always struggled to keep up with the sequences of the instruction, especially if it’s verbal.
You could simply state to me how to do something seemingly very simple, by the time you’ve gone through all the instructions and sequence of events to land on the finished idea/product etc, my brain has forgotten a lot of the previous steps you told me already. I’ll often find myself remembering the last instruction only, the rest has gone.
And then if you tell me what to do, and then say what not to do, all I can remember is what I’m not supposed to do.
In fact, for some reason, it doesn’t matter which comes first if you tell me what not to do first and then tell me what to do, or the reverse, I still seem to struggle the moment someone tells me what not to do.
Some instructions are literally only based on what not to do! And with these I become dumbfounded. It’s not that I don’t understand not to do the thing you just told me not to do, it’s that I can’t seem to extrapolate from that, what TO DO instead.
I realise how this sounds. It sounds like a person who is not only dumb but also has no creativity.
It’s not that there is a lack of creativity, but that my creativity can only bounce off what I do know.
Since I read that sentence about it being best to tell us what to do, rather than what not to do, I’ve tried to make sure that anyone giving me instructions or whatever tells me what to do only!
By that, I’m talking simple things.
For example, my mum is often the person who drives me to appointments during the week. When I need to book an appointment I often need prompting and reminding, but I also have to book appointments on days she can drive me.
In the past, I’ve been given a list of the dates she can’t! And it always messes with my mind! So last time I told her only to write down the days she CAN do.
And it was much easier for me.
Meditation diaries: A ramble from being ultra-calm to wanting to explode.
The other day I felt so oddly calm. It may have been lack of motivation to care about anything. I don’t know.
But it was certainly calm. I even started writing up about ‘calmness’ only to find I was too calm to continue typing it up. I realise I had nothing much to say other than, “wow i feel so oddly relaxed considering how agitated and desperate I became just a few days earlier.”
Well, that calmness has gone.
I’m agitated and irritated by every little thing, even things that would normally have at least a minimal soothing effect.
Ear defenders to have some semblance of silence after I felt that noise was irritating me, only to find the ear defenders started to irritate me and then the silence started to irritate me. And then when I took them off I was irritated all over again at the feel of my ears getting used to not being covered again. Then I was irritated by the noises again.
I paced a bit. Came back in. Was instantly irritated by being back in my flat.
Tried talking to someone, not about this topic just about anything to distract myself. Felt irritated with the conversation. Realised halfway through talking I couldn’t really be bothered with it and so said those things you’re expected to say, “So i’m going back to my flat now, see you tomorrow,” All that stuff. Went back to my flat.
Still agitated.
The voices on the radio, music, knowing certain people exist in the world, my own existence, the frailty of life, the lack of any meaning to it despite all the fucking suffering, agitation and angst.
Which is like a slap in the face. Why bother with all these emotions when it’s all so pathetically ‘accidental’ and meaningless?
Yet still, my biology feels the way it feels. We like to try and forget that our biology dictates a lot of how we feel.
And that is just another slap in the face, my brain, my body keeps sending all these hormonal signals and neurons into a frenzied attack of making me want to scream all the while knowing I’ll be irritated by my own fucking screaming.
Everyone’s feelings and attitudes absorbed by me (or so I perceive) and all I want to do is push it all away. Keep away from me with your feelings and your baggage is what I want to scream at people. KEEP THE FUCK AWAY FROM ME!
And then in the silence and in being alone, I realise I can’t cope with my own baggage either. At this point my baggage is so messy it’s not even funny. The bag is bulging to the brim of messed up shit, a lot that makes no sense. And I can’t seem to tease anything apart into breakable, edible pieces.
I think of a song I might want to listen to because a lyric comes to mind then I realise, no I don’t wanna hear any fucking sound. Even if it is one of my favourite bands.
The sun shining is provoking me, poking my agitation with its rays, “Here I am. A complete contrast to how you feel. Ah just soak me up.” And for a moment I think, “Maybe soaking you up will help?” After all sunlight is good for us, isn’t it?
But I’m resentful of the sun shining right now in this moment. I’m resentful that humans as a species made it so the sun is a symbol of happiness. Because I can’t connect to that word, or that feeling and never have been truly able to.
I think it’s a thing that doesn’t exist. Not in the way it’s sold.
But despite knowing this, I feel I’m perpetually mourning the ideals of ‘happiness’ we’ve been sold.
When I was amazingly calm the other day I remember feeling like I’d let go of everything, because everything just was and everything just is. I wasn’t particularly happy, in fact what I was somewhat feeling could have been described as sad. But I’d somehow for the day managed to let go of any expectations and of other stuff I can’t quite put my finger on, and so any feelings were just…well they didn’t have much weight to them.
What puts the weight back into them? I don’t know how my feelings gained weight again. I just know they did. And now they’re obese again with pressure and the heart is working harder to keep from losing itself.